Here’s the
latest as of today... Friday the Thirteenth
Yesterday was
stem cell collection – day three. The short version is that Don had a really
good day with 6.05 million good stem cells collected, for a three day total of
11.57 million. The goal was 10 million. This means there is enough for two
transplants! No more 5-hour long stem cell collections.
The stem cell
collection process is pretty mundane. One is connected by two of the “lumens”
sticking out of the chest to the collection machine. Don was not at all mobile.
Laying in bed that long gets uncomfortable. Plus one either has to be on good
terms with a bed pan, on plan ahead.
The night
before last was a long one. Don’s incision site continued to leak blood. Don
was up much of the night dealing with that, staying over night again at the
hospital.
To compensate,
yesterday Don slept during part of the stem cell collection. The machine sort
of chugs along and the sound is similar to being in a train. When he woke up
Sami taught him a few ukulele chords. Don and Sami strummed “Ain’t Misbehavin”
and Cici, the Red Cross nurse danced to the music. Don observers that ukuleles
are neat because they are so portable and cute as well!
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| The stem cell harvest is over and Don is relaxing in his penthouse suite |
So, we are now
in maintenance mode until the high-dose chemo and reinfusion happens, soon
after Christmas. Maintenance means we visit the Out-Patient Infusion office at
the Cancer Center three times each week to get the line flushed and the
dressing replaced.
It may take
Don a while to get used to three lines and valves dangling on his chest. They
complicate dressing, undressing, and bathing. The apparatus should not get
wet, and Don doesn’t want them to get tangled in his clothes. How to sleep
comfortably is being worked on.
Before
closing, we want to mention that we thought both of the Red Cross employees
that did the stem cell collection were really great. Mike was there on day one,
Cici did the collection on day two and three. Cici was a kick! She was
professional and thorough in her procedures, but all the while she was kind and
warm-hearted, and easy to tease and get giggling. You can almost say that we
had fun. She called the collection machine “the albatross,” in a positive way.
Don wants to
take this opportunity to thank Sami for her endless help and morale support,
from being a second set of ears, to tying shoes and washing hair, and chasing
down many cups of coffee at the hospital, and especially being there with him
through all of this.
Don ends this
entry by saying that he now feels a little more like a cancer patient.
Cheers!


2 comments:
What an adventure -- BIG HUGS and LOTS OF LOVE to both of you, Mom and Dad!!! - Emily
You guys are AMAZING!! Thanks for taking us on your journey! XO!
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